Lymes Disease Updates
I will save all you nice Lymes folks and force the family to suffer through the Lymes ;-). I had backed down on my medication for a while as I had a lot of obligations that I couldn't allow myself to spend too much time sleeping. That is a huge side effect for me is the tiredness and my tummy problems. Actually the only time I don't have a sleep disorder is when I am killing the Lymes. Although it has been much improved with my thyroid medicine.
The night chills specifically are another effect for me. but of course for me....chilled is a lifestyle ;-). I am the only person in the world who on 100 degree days is wearing pants. But the specific night chills that cause me to wear 5 layers of clothing and then waking up gasping for water?... those are so much less. The night chills are at night I get teeth chattering cold. Not just my normal daytime cold. I never knew that there was such a thing I just knew it happened to me.
People wonder why I don't give a damn what anyone thinks about me. I wouldn't have gotten through life if I did. I do however give a damn about how I am treated by others and how I treat others. I guess I always cared more about my own comfort then other people ;-). Because I hate being cold!!!
The sun sensitivity is in great part due to my coloring.... the serious light sensitivity, is another one that has come and gone through the years. It came with the migraines. When I think back my migraines st oped in my mid 20's or so. I did however start getting them back for a period in my late 30's but that was due to TMJ. My bite alignment was fixed and they stopped.
I started having them again when I first started the protocol they where horrible. Now I keep my sunglasses on all the time and they are fine. Without my sunglasses I would be on meds all the time. About the light sensitivity is that I have always had it to fluorescent lights. And when I was out in a cube I always wore my sun glasses. Now on the protocol I find myself back to any florescent light will give me a migraine.
In fact in the beginning we started me out to high because I had horrible side effects but I wanted it to go quickly. Patience's is one of the lessons I am here to learn. So we backed me down and worked our way up.
I am ready to bump up to the 100 mg's and will discuss with my next appointment. I have to say that I don't think I could have done what I did this past 7 months between work, home and moving mom back if I hadn't have been killing the Lymes. I haven't had a "sinus infection" since I started the protocol. However, when I work the protocol. Which means I schedule my bad days for my life not schedule my life for the protocol.
I know for 24 to 48 hours when I take my antibiotic I am going to feel like crap. Which means I need to sleep all the time, it means I really cannot eat although it is not so much that way anymore. But in the beginning it tore my stomach up. Now I have had the heliobacter (sorry Tak you will have to fix my spelling) that causes ulcers in my stomach previously. I believe that the reason I had such a hard time in the beginning is that it was really dying quickly and a lot. I have always had stomach problems off and on all my life.
This was how I found about bromine in the bread that poisons us and our stomachs. Of course I have believed for years that we have been poisoning ourselves as a country. Although eating organic and non processed is not realistic for a great deal of the population unless you have Trader Joes!!! But like everything in life if you make the best choices when you can and go crazy every now and then. We should be ok. Sorry I digress.
Sometimes I have joint pain and on the higher dosage I did have a lot. Not so much anymore. I do get cold from the Benicar and it does work as a blood pressure lowering medication because that is something I know. I will confirm it sometime at my doctors office but I know how I feel when I take it. The ringing in my ears is again now only when I come off the antibiotic feeling crappy and start to feel better. Or vise versa...I am still tracking this because it is so infrequent now!! The dizziness has always been sporadic enough that I cannot track if it is blood pressure, lymes... I usually know when it is dehydration and it hasn't been that lately.
2 of my lymes side effects of hair falling out and be hungry all the time are now gone too!! My hair still falls out a bit but not like it did before!! YAY!!! To bad it won't make it curly too ;-).
Well I am going to move on to my personal life. you are welcome to read but it might bore you to sleep...well if you are one of us sleep disordered people... then you might appreciate that ;-). I would like to reiterate that this is my experience. Cole asked me this weekend how did we know his Lymes was cured. So we went through some things and I told him I thought he was normal tired not Lymes tired. I explained to him that his parents caught it quickly so that is how it can be cured. If caught quickly.
But Lymes is the great imitator so people don't often test for it. There are a number of test that can be done. They are to check the CDIFF, VITAMIN D LEVELS, and Western Blot (there is only one lab in California to use for this. I don't have the name but when you read about the test on the internet you will find the name). Robbie told him that if he ever felt like he didn't feel well and wanted to be tested all he had to do was tell them and they would take him.
Mom is doing GREAT!!!! She is so happy it is almost sickening. Once she gets her furniture there may be no living with her ;-). And we are all SOOOOOO HAPPY SHE IS HAPPY!!!! She is very cute with her friends and herself. She is very sweet and we had a very nice day on Saturday. We ate and shopped and shopped and ate ;-). She got a cart that I will put together this week so she can use it along the streets on her walks to shop and stuff. She got silverware holders finally and she got a laundry hamper. I got lots of new tops and she got 3 pairs of pants. I am getting skinny!!! Thank you Dr. Fishman...no not diet pills. It's the killing the lymes.
Let's see.... on the house not much to report. The took out 3 more trees to put more horrible plantings at 1500 a pop but no retaining wall. That leveled me yesterday. Now the errosion will excelerate at such a rate. I am f'd so hard it isn't funny. Oh well. The basement isn't a bad place but I am going to get a bed for down here. Maybe I can find another twin bed for cheap and move it down here. It is warm in winter and cool in summer ;-). On to a subject that doesn't wreck me... My boys.
In order by age. Jimmy and Stever will be out here very soonly YAY!!! They arrive on 8/8 (Happpy Birthday Linda Croke). Maxie just got back from Outward Bound rock climbing camp and said it was epic!! Will get more details from him tonight. He will be forced to tell it 2 nights in a row ;-). And Cole and I had a wonderful day yesterday!! We had brunch with Robbie, Mom, Di (family friend from Arizona) at my favorite place!! We went to the movies, he hung out with mom while I came home and walked the Daisy, and then we went to dinner. When we got home we made red velvet cupcakes and he did most of the work! We watched the Simpson's whose Movie comes out this week!! YAY!!! Midnight Movie at the RIO!! I didn't mean to leave Wes and Sean out. They are having a nice summer and Wes is getting ready for collage.
Speaking of the Simpson's. Cole and his friend Collin went with me to see the Kwik-E-Mart from the movie. They took 11 7-11's and turned them into Kwik-E-Mart. They were very cool and the facade's were changed. All the displays were changed, etc. It was great and I am glad we went in spite of my beltway phobia and coming back through RFK ;-).
Well that is all for now.
Take Care... Be Safe.. LU2PMBU